My cousin Ade has a complex cardiac defect. At 19 weeks his heart defect was diagnosed as Tetralogy of Fallot. He spent 69 days in the NICU, was home for 2 weeks, then had a seizure and was readmitted for a total of 97 days. His NICU stay was full of IVs, medications, blood transfusions, x-rays, ultrasounds, MRIs, CT scans, a liver biopsy. At one point the doctor said he wasn’t sure if he was going to make it. He had surgery for duodenal atresia the day he was born and a g-tube placed, and surgery for TEF/EA three days later. He had open heart surgery on February 27th for Tetralogy of Fallot with severe pulmonary stenosis and DORV. Surgery went well but recovery was complicated. He went into severe respiratory failure and needed a cath lab the next day. He had severe lung disease and got breathing treatments 4-6 times a day. He had multiple g-tube infections and leaks/bleeding. He is now on anti seizure medication too.